If any one has any idea what is causing this I would love to no. It is essential that people with fibromyalgia get enough sleep. I had facial paralysis following a massive dental trauma and with it came a metalic taste, a feature of "Bells Palsy", the catch all phrase used in facial nerve paralysis. Unfortunately, strong odors are not limited to the workplace. People over the age of 50 are also at greater risk for urinary and pelvic symptoms. Although theres no reason to feel ashamed of any symptoms or side effects you experience, it can still be embarrassing when brain fog causes you to forget what you were saying in the middle of an important work meeting, or a sudden burst of pain makes you drop the dishes you were putting away in the kitchen. I always feel awkward telling my doctors about my GI-related symptoms, whether it be nausea, constipation or diarrhea. Mattie M. I have diarrhea. Anyway, nothing showed on the scans. I am trying to think if I've heard of anyone with similar experience, but at the moment I can't. In rare cases, a disorder called maple syrup urine disease can sweeten the smell of urine. However, on bad days, individuals should still try to be as active as they can. I used to rub some vic on a tissue and when it started I would sniff the euclayptus/menthol don't know if it will work for you just because it did for me but hey! Its over 100 degrees out so every place has the AC cranked up and Im trying to warm my hands enough to have feeling in them. Kristi R. Spasms. It was immediately absorbed into my mucous membranes, and I could taste that smell for the rest of the day, no matter how hard I tried to mask it with coffee, Lifesavers, or unscented air freshener. The problem is I am so used to it that sometimes I don't even notice when it starts or stops. They have no answers for me, no where else to take and sort out my problem, hence coming on a forum to ask anyone if there is anything new. It's no good, the Pharmacy brand spray, off the shelf works better. I knew I smelt something that made me wanna weep!). Hi. Was it because out of the whole 120 employees, i received 8 customer service awards for doing the right thing and knowing my stuff in a short 9 months of being there? My stomach problems interfere with my life constantly. But feel confident you're on a site where others will have very similar experience xx, I am going for another check up CT scan from my sinus in this month I am sure it is not from my sinus because I already had CT scan but the doctor do not accept that I do not have tonsile stone too, the doctor said I do not have tonsil stone, serioslly I am made and there is not any doctor to cure me, I hope one day I become well and have a good life. At present I'm laid up in bed with a heavy cold Crickey, thanks so much for replying.! Brief or mild urine odor symptoms can stem from certain foods, medications, vitamins, or dehydration. Today, MCS is a recognized disorder. The random back spasms that leave me unable to walk while in the middle of a store. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Fibromyalgia News Today is strictly a news and information website about the disease. Today has been a day of complete no taste no smell for me. . But recently, some people have been reporting a strange new side effect from the vaccine. An hour later this morning i did it again [nosrtil douche i suppose you can call it ..lol] and no congestion yeehaa..no stinky smoke smell.! I asked family if they noticed it and they could not. I always feel awkward telling my doctors about my GI-related symptoms, whether it be nausea, constipation or diarrhea. Mattie M. I have diarrhea. That's another story.. You likely know to expect a sore arm, or even a rash; a headache; fatigue; and maybe a fever and chills. Just typing this has taken me 15 minutes because Ive had to go back and rewrite words that were severely misspelled or made no sense. Marissa E. I mix up words and it comes out so weird! I really thought it was air-conditioning causing these strange symptomsI am at a loss! I didn't even try to quit until I ran out of them 25 days later. By day 5 I'm suicidal. Learn more about the condition, including its symptoms, causes, and, Fibromyalgia makes a person feel pain all over their body. It is not the smell per se, it is the chemicals that are causing MCS, etc. This is called abnormal pain perception processing. It saves lives. And don't worry, the vinegar smell will go away too once it dries up. I don't excercise, i watch my sugar and saturated fats intake, i am overweight but not obese [under 100 kg at 5'8" tall]. I have also been having problems with my shoulder with a trapped nerve. Also, a treatment that works for one person may not work for another. Since I'm not a doctor, I'm not going to suggest treatment. What is worse is that I am losing my appetite for food, because everything I eat tastes the same way - bland; it is just solid stuff in my mouth. That condition would continue until some other smell replaced it. 7. It drives me crazy and find it hard to sleep. Under normal circumstances small amounts of histamine help to facilitate health and balance in many systems of the body. Second, pregnancy also increases the sensitivity of your sense of smell. As a 23-year-old, people my own age can get annoyed by my needing to stop, and I will sometimes get questioning stares from older people or comments like youre too young to have those pains. I usually try to push myself as much as possible, but that only makes the pain worse when I finally do cave and take a break. Shelby C. The red rash I get on my neck from thin air. Do you mind me asking what your disorder for the strange smell is? Fibro fog takes the cake for me. Urine that contains a lot of water and few waste products has little to no odor. It gets stronger during the holidays. It's like he's here but he's been dead for more than two yrs. I know stress can cause many odd symptoms and the ghastly time you had at your workplace must have been hell, I'm wondering if it is linked to that. This will result in a fishy and . I understand that its my fibro. If the windows had been opened, I never would have made it till the fall. (I can't tell you how many times I searched the house, looking for that odor that no one else could smell.) I am sensitive to many smells but the 'wet wood' smell is one of the smells that I first noticed. Urinary frequency and abdominal bloating is quite common amongst fibromyalgia patients, particularly women. How many mgs did you take daily. You may have been over exposed in this way or to some other chemical. I had a bronchoscopy and no fluid just inflammation. I usually end up in bed all day when this happens. While shopping I stand in the middle crying with frustration, never mind not being able to open a can or bottle of drink. Ann W. When I am in a flare my muscles become stiff and weak. I have just ordered one in the hope it will help to heal the issue. I hate soaps or scents, especially floral, citrus are somewhat better. Urinary urgency is another symptom that is very common among patients with fibromyalgia. Periods of physical or emotional stress are common triggers for fibromyalgia. The big problem is that one does not get enough body signals that something is seriously wrong; namely having accumulated too many poisons in body, until the immune system suddenly dives of the cliff, with a big painful splat when hitting bottom. Fibromyalgia is a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues. I hate cigarette smoke. Like just suddenly and out of nowhere, my bladder cramps and I have to go immediately. Ill often squeak or yelp when it happens because it hurts. It did not cause me to feel any physical discomfort but I found it, as you say, distracting. Im no longer alone with my overactive nose. My eyes watered, my nose ran. My issue i am smelling brewing coffee every day in my room and its driving me nuts. Never offered a cure, but as the dental problems resolved so did the smells. I believe it may have been cinnamon which can cause low blood sugars and when burned will taint every cloth item in 100 meters. ENT specialist found nothing either and suggested an operation which may or may not work if it gets worse. I use distraction techniques for most things but with smell its hard. look up multiple chemical sensitivity. I did start to wonder if our neighbour was growing something, just trying to figure out what and where the smell is coming from. Hi and yeah, I still smoke and my sense of smell is really high, sometimes my hubby brings in my tea and I can't eat it because the smell of something will put me off it. Its weird I know! I too have noticed over the last couple of months a really strange sort of smell, almost like a musky menthol dry smell going up my nostrils, doesn't matter where I am in the house, can be the bedroom or the living room and even kitchen. Turns out we plenty.. Our problem was mold. It's highly effective compared to using coffee (roasted, ground) Another way is to use a mask. Im not a coffee drinker so its not super pleasant. Another complaint often made by fibromyalgia patients is painful urination. I need to nap to get through the day. Kirsten M. R. Exhaustion and seclusion. It now smells like a wood fire has been put out by water and seems to burn the inside of my nose too. . Cloudy urine could be related to dehydration, an infection, or some other less comm. this might sound odd but I complained my doctor about smell in urine. My name is Aimee.I am so tired of this smell in my noseI to think it's worse indoorsnot as bad outsidesometimes I have a hard time falling and staying asleep as a result. I wasn't just ignoring it because it actually went away. But out of interest i would ask people near to you just incase. While regular physical activity is recommended to help manage fibromyalgia symptoms, it is crucial to limit overexertion and not to do too much. Update 2/11: I started noticing when and how do I get the smell. Resistance and strengthening exercises may improve muscle strength, physical disability, depression, and quality of life. The Fibromyalgia group had an average score of 29.3 +/- 5.4, while the SSc group had an average score of 32.1 +/- 4.2. I am "healthy", sporty, talk a lot, write a lot. Hi, I read your problem with the smell. I sometimes go days without eating because of it. Melissa G. IBS [irritable bowel syndrome] and all the loveliness that entails. It is frequently found in people with fibromyalgia. I'm also amazed how many people smell this Smoke. Do not put in when is hot just warm to the touch. The smell stinks it makes everything in the world stink! Click here to subscribe to the Fibromyalgia News Today Newsletter! And like thats not bad enough, I have random bladder cramps. All the time. All rights reserved. Infection. What now? The weirdest thing about all of this is what i'm about to tell you now.during this sensation of smelling these weird smells, when it gets un-bearable and tears are pouring out of my eyes, if i open the top of my T-shirt, bow down and put my face in there, the smell vanishes as soon as i breath inside the T-shirt. If anyone in my house has been cooking, even hours before I arrive, Im nauseous the moment I open the door. We avoid using tertiary references. now. What I found that is that the receptors in the brain are off or not communicating due to that sensors in your brain are sending the wrong signals to activate to act. Even today, some doctors wave off fibro symptoms as being all in your head. This isnt the case. This means that a doctor should be able to confirm: The Social Security Administration (SSA) requires medical documentation dating back 12 months related to the disease and may conduct interviews with relatives, friends, neighbors, and past employers to confirm the diagnosis. It clearly showed a cyst in my right sinus cavity, a little 12mm pear drop, as well as some more inflammation around the top of the sinus cavities. Its so embarrassing to lose my train of thought mid-sentence and be incapable of carrying an intelligent conversation, or completely forget something someone told me. Just like the pain with some doctors (& I do say some) they seem to think it's all in our heads, perhaps it is the same with the smoke??? We'll never know. Thank you. I know your post is a few years old but I seem to have all these symptoms. Sometimes a combination of those 3 symptoms. This might help a person with fibromyalgia find out how to better manage or avoid those triggers. Road trips are a b****! Shelby L. S. With pain, when its really bad I get angry at the pain, myself and others. That is the cause of the smell in my case. Its driving me insane to the pint I want to cry xxx. I've had this problem since father's day 2015. The list of things to which I am sensitive is getting longer and longer. lotion, oil, candy, baked goods, everything is Rancid. Good luck, and try a bit of menthol under your nose. When and how to treat smelly urine When it is an emergency. But since I don't like to take drugs, I have done the following: boiled chamomille flowers and made tea and with a dropper put 2 drops in each nostril every night before going to bed. I dont eat ham but the smell in urine started after I had ham. We'll keep this short and sweet: "Some people notice that they have a coffee smell to their urine after drinking coffee," Dr. Agarwal says. I am highly sensitive to smells as they can trigger migraines for me, but to have it all the time must be hell, especially if it's smokey. Another fact is that each passing year, we are losing our ability to smell and to organize the characteristics of the odor such as sour, sweet, spicy, etc. Wet wood smell. I especially loved cooking with herbs & spices Now I find this like trying to paint a picture blindfold - getting someone else to taste, check & otherwise refine dishes isn't the same. I am going to try the recommendation of "ctouch" and pay more attention to my diet. Sorry, just my meds making me sound like it! Garnet D. When someone goes to touch me, I always flinch because I know its going to hurt. Amanda P. When I have to tell people please dont hug me goodbye or hello because it hurts too much. Audrey M. Loss of grip and movement in my hand resulting in numerous dropped jars. Natural remedies can sometimes help, depending on the cause of your smelly urine. I could taste the smell all night and choked back nausea until morning. Many people are wondering if we need a sixth shot. There may be pain in the lower back or groin, but there may also be a foul smell to your urine. Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked. Fatigue is one of the main symptoms of fibromyalgia. I was unable to relax in that easy chair. However, symptoms may vary among individuals. Copyright 2023 Handcrafted by Clearfix Inc. We use cookies on our website to give you the most relevant experience by remembering your preferences and repeat visits. It is more common, however, that people with these chronic conditions will suffer from UTIs . This is called abnormal pain perception processing. Hi self employed, I thought I was the only one having smoke smells and now it is the smell of burnt BBQ sausages or meat. The woman in the picture looks exactly like I feel when Im having a reaction to a chemical odor. I spent over $50,000. Read More. I live in Texas. that could be related to the cyst. Finally told I had severe fibromyalgia. Some people with MCS have no sense of smell. I hope this helps you realize that you are not going crazy. I haven't smelled it yet today and it's nearly 9.00 AM, woke at 6 am. Hi, Im sad to say that Ive developed this awful experience myself. I, too, feel like I'm going crazy! She said if she breathed through a bedsheet or her shirt it helped. Around two percent of the overall population of the United States suffers from fibromyalgia. He was a nice person, and he had worked there far longer than I had. Just wondering if anyone else has problems with their liver? And worrisome! This is the longest this smell has stayed with me and I can't stand it. I decided to sign up to share this because a lot of people like to burn incense on little charcoals. Omg I have been smelling an odd smell for years and have recently connected it to stress, I have not met anyone with the same problem , it drives me crazy, people look at me as if I'm mad when I say what I'm experiencing, I also put my head down my top sometimes , it's also worse at home especially when I'm in bed. So, Im not crazy?!? There is currently no cure, but an anti-inflammatory diet might help. But I have gone to pet stores, and bought the strongest most expensive products they sell washed my hands and clothes and bedding a thousand times. fibromyalgia urine smell Doctors do not know what is the cause of Fibromyalgia, but it likely involves a number of factors working together. It help with sinusis, dryness and the fantom smells, at the same time that is a gland moisturizer, anti-inflammatory and a saline. Overflow incontinence - Urine drips constantly from a bladder that is overfilled. I cough and my eyes water also! I understand completely what you going through..Im bothered act the fact , the smell can be in the room , but no one can smell it ,, i I dont know what to make of it .. but I to would like to get closure. But to this day I still have strange smells in my nose. Does anyone have problems with their liver. Some of the chemicals they react to have no odour. When it strikes, I have to sit down immediately, regardless of where I am. Lisa T. Gastrointestinal issues. Eeeew i can't stand the smell of any dog especially wet, when i could smell. Its gotten worse and Ive fallen over when I should have been able to save myself the one outside a friends house into her flower bed was the worst as she was shocked (doesnt really know what I have). Lisa B. Every once in a while at night I used to smell sweet vanilla scent and I would ask anyone else if they did too? I used them for 10 days of it and tried to give them up. We just came back from a 14 day cruise to Noumea. When fibromyalgia pains flare up, every activity can seem more difficult. PS..the hotter it has got, the less the smell for some reason? Smelling burnt things is common, as is rotten or disgusting, or otherwise unpleasant, smells when experiencing this kind of Hallucination. Nasal Spray.. addictive yes. Tenderness to touch. You could try replacing your normal thoughts about it with a thought that just tells you that it isn't real because there is no smell of smoke. I have been dealing with this for 20 years. I have suffered for 6 months with it coming and going, no pattern or other symtoms. The surgery saved my life! I notice that if I eat starchy food, bread, potatoes, or fatty food, cheese, dairy, milk, meat. For such people, Social Security rulings in the United States dictate that so long as a medical or osteopathic doctor can determine that the disease causes medically determinable impairment (MDI), the condition will qualify as a disability for Social Security payments. I was just wondering if it is the extra hormones produced from having the large pituitary gland could be causing this smell. I can smell "urine" on things that no one else can smell and some smells send me to bed with incredible migraines. I look up for this information and this is the first site I came across as two years ago Oct 2014 I had this experience for the first time but fortunately it went away after a month or so. I also have anxiety, depression and IBS. I have since had surgery in 2006 and have been free and clear of all symptoms! However, medication and lifestyle changes can help treat fibromyalgia and reduce the likelihood of flares. Oh wow. The stress of coping with a condition can also lead to anxiety and depression. A doctor. Drink way more water ! It's also called "fish odour syndrome". I am grateful to have landed this thread cause it is like so early in my country and I should NOT be awake but here I am. Preventing a flare from developing in the first place is less complicated than treating a flare. I have gone through all the comments but sadly none of you guys seem to have this figured out. I hope you find a solution to your problem soon. No snow here yet lol!! I sometimes go days without eating because of it. Melissa G. IBS [irritable bowel syndrome] and all the loveliness. I had this smell in my nose problem for a long time. The most annoying is that things such as petrol, rotten odors, smell of sweat, some organic chemicals, boiled meat etc. Symptoms of fibromyalgia flares vary but often involve widespread pain, joint stiffness, and extreme sensitivity to stimuli. While urine odor may vary, it does not have a strong smell. At first you may find that everything in your mind wants to convince you that you can smell it but just bat back with a strong thought that feels easy for you. Just like you drinking a lot of water is not helping.. Please join us on facebook.. there are about 20 other people suffering from same issue. I was prescribed cortisone spray. It started about 2 months ago. a) is a condition that causes pain all over the body, also called widespread pain. I have a doctor appointment with a neurologist coming up soon, maybe he will give me some answers. The first site I came to was a research. Like a mental tennis match. My GP sent me to an ear, nose and throat specialist, whom sent me off for an MRI scan and also put me on expensive nasal spray. However, this chronic pain condition creates a, Fibromyalgia is a chronic syndrome that can cause widespread pain in the body. I did not know MCS existed until now! Also, if you are on an extremely low carbohydrate diet, that can cause what is called ketosis and that causes the urine to have a strong odor, too. The condition continues. I never thought it was related to fibro until now. Feeling of having to urinate, but nothing comes out, can be sign of bladder cancer, though urinary urgency as a symptom of this disease is relatively rare. It's crazy. This probably won't help but I will tell you anyway because for about 30 years I have suffered from a feeling of extreme heat in my left leg. Polyps are smaller. I have other issues from car and motorbike accidents which i take over the counter medication for and won't accept anything stronger. a) is a condition that causes pain all over the body (also referred to as widespread pain), sleep problems, fatigue, and often emotional and mental distress. But, I just want you to know that you are not alone with this strange condition. However, if your urine has a sweet smell or a foul, fishy, or musty smell it might be a sign of infection or another health issue. The National Academy of Sciences estimates that up to 15 percent of the U.S. population is affected. I avoid large crowds due to the different smells and noises. I know i did the right thing and that's all that matters.! When my sister had her baby I was holding her and sniffling and some thought I was sick and holding a newborn! Too late. You're taking a sulfa drug so that means your urine does become more concentrated. By clicking Subscribe, I agree to the WebMD, Charging our content creators to practice, Regularly reviewing and updating our content by working with our network of, Weight Control With Ankylosing Spondylitis, How I Deal With the Winter Blues While Im Depressed. Home; Begin I can have on my liver. When traveling abroad, the smell of sewage in one river caused me migraines. My trigger seems to be dental infections. The opinions expressed in this column are not those ofFibromyalgia News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining tofibromyalgia. Ever since I moved to my condo I have have had lung issues. On public radio once I heard an episode of "Radiolab" which discussed a different issue, but the "treatment" may be somewhat related. I have not come up with any solutions. You are destined to turn out to be very watchful about the scents and cause you to grow into exceptionally sensitive over nothing. I cant sit, stand or walk for more than 30 minutes at a time. I read most of the comments and I taught I am alone but unfortunatly there are a lot of people which they are suffering from same illness that i am suffering, I am male 27 and it is more than 10 years that I am filling bad breath from both mouth and nose I visited a lot of doctors and spend alot of money on medicine to cure myself but unfortunatly there is no way for me, I have no infection in sinus and throat and the doctors are saying there is no problem with me, I can not set beside someone in the bus in the train. Strong chemical smells were emitted by the materials used. Scientists estimate that around 4 million adults in the United States have fibromyalgia. Fibromyalgia is a complicated illness thats not well understood. I have the same problem, maybe it is psychological, I moved to a house that I am not so happy with and miss a lot of my friends etc. I have been wondering if it might be an internal candida (fungal) infection or bad bacteria bloom due to drinking too much soda lately. More information Teenager sitting on the toilet More like this Fibromyalgia Syndrome Fibromyalgia Pain Chronic Migraines Chronic Fatigue Syndrome Endometriosis With me things don't taste like they should either. Hello. Hi, i also have episodes when i smell cigarette smoke or nail varnish remover when theres none around. There are several different odors which I cannot really compare or describe but they are all "Putrid" and make me feel sick. Maintaining a log of activities, meals, sleep times and duration, and symptoms of fibromyalgia may help to identify particular triggers. Medicine can't explain it. Although exercise may increase pain at first, it may help prevent pain over time. Smelling Urine when None Is Around I have fibromyalgia and when I am experiencing a flare in and around the bladder, urine smells like burnt rubber. I cant do anything too long or I get so tired it becomes painful to keep my eyes open. Hey, crickey, that's almost going the other way hey..! I have the answers!!! The neurologist did look into my nose and said it is still not right? Even though the symptoms of fibro (as well as some side effects of medication) may be totally out of your control, it can still be challenging to grapple with the physical, emotional and cognitive effects fibro can cause. It could last 3 minutes to an hour or longer and if longer the inside of my nostrils feel like they are on fire. It is common for cystitis sufferers to notice an unusual smell or colour to their urine. I know what you mean about missing scents of either flowers or perfumes. Learn more about which foods to limit or prioritize to manage fibromyalgia here. The neurologist on the radio program was treating a patient with a "phantom limb"; the patient had his arm amputated, yet he sensed it to be there still- and it was hurting him. Im talking about things as innocuous as fragrances people choose to wear. Good luck! I will await the scan results first Im having the same thing i dont know what it is but whenever i smell it i vomit and my stomach hurts. The patient was able to find relief by "tricking" his brain. I thought some smokers were outside and the odor was being carried in via the ventilation system. Tests to check for some of these conditions include urine and blood tests, although you may also have X-rays and other scans. I want to enjoy yet my body refuses and others see me as a killjoy or just too fussy. Vee Vee Y. THank you. Does anyone have issues with cooking odors? Activities that may help people with fibromyalgia include walking, biking, swimming, and water aerobics. I have had to cut my hours back at work and Im barely making it by. Nothing new but it is good to have a name for it. Researchers believe that fibromyalgia amplifies painful sensations by affecting the way your brain and spinal cord process painful and nonpainful signals. Muscle and joint stiffness. Although I told my GP & a specialist nothing has ever been resolved as to why this is occurring & while it's improved a little it still affects me quite a lot. I was making dinner for my Hubby and it had a few different spice's in it. And I am getting sinoplasty on the state to fix that (breaking open the right sinus passage so I can breathe properly). Its over 100 degrees out so every place has the AC cranked up and Im trying to warm my hands enough to have feeling in them. Kristi R. Spasms. It must be horrid for you to have this because unless someone has ever had phantom symptoms they just can't understand how real it can feel. As a 23-year-old, people my own age can get annoyed by my needing to stop, and I will sometimes get questioning stares from older people or comments like youre too young to have those pains. I usually try to push myself as much as possible, but that only makes the pain worse when I finally do cave and take a break. Shelby C. The red rash I get on my neck from thin air. I tend to forget about it until it comes again but would love to know what causes it and how to stop it. my snozzle needs "descaling" and creaming to moisten it and cover any raw areas, I have no nasal secretions when I get a cold its weird, IF I go outside especially in winter; the cold air makes me cover my nose as I get enourmous smells from the air and around which make my nose tingle and smart and my eyes well up! tingling, numbness or swelling of your hands and feet. Sometime its just in one spot, sometimes its all over.
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